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Author: 330

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Improving Online Communities for Stigmatized Healthcare: Countering In-Group Microaggressions and Fostering Supportive Connections

Women face significant challenges in seeking support for sexual and reproductive health (SRH) due to cultural taboos and microaggressions, even within supposedly safe online spaces. This study focuses on unmarried South Korean women who encounter these difficulties and often risk detrimental health outcomes by avoidin…

Hyeyoung Ryu et al.University Of Washington

Trust, Safety, and Privacy in Online Communities

Amplifying Cultural Values with Collaborative Photo-Elicitation: Strengths-Focused Co-Design with Alaska Native People

Focusing on deficits in research with historically marginalized communities, such as Indigenous communities, perpetuates negative stereotypes and overlooks their strengths and resilience, contributing to mistrust and epistemic injustice. Shifting to strengths-based research approaches promotes more constructive narrat…

Lisa G Dirks et al.University Of Washington

It's About the Journey - Capturing Stories of the Fluctuating Experiences of Youth Kidney Transplant Patients

Youth who undergo a kidney transplant can experience a fluctuation of successes and challenges throughout their chronic illness journey. Designing to capture their journey could help youth to reflect on their experiences, collaborate on their care, and be empowered to live their lives to the fullest. We interviewed 11…

Julia C. Dunbar et al.University Of Washington

Session 2a: Navigating Family Dynamics and Youth Health Journeys

ConverSense: An Automated Approach to Assess Patient-Provider Interactions using Social Signals

Patient-provider communication influences patient health outcomes, and analyzing such communication could help providers identify opportunities for improvement, leading to better care. Interpersonal communication can be assessed through “social-signals” expressed in non-verbal, vocal behaviors like interruptions, tur…

Manas Satish Bedmutha et al.University of California

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Designing Communication Feedback Systems To Reduce Healthcare Providers’ Implicit Biases In Patient Encounters

Healthcare providers’ implicit bias, based on patients’ physical characteristics and perceived identities, negatively impacts healthcare access, care quality, and outcomes. Feedback tools are needed to help providers identify and learn from their biases. To incorporate providers’ perspectives on the most effective way…

Emily Bascom et al.University Of Washington

“Laughing so I Don’t Cry”: How TikTok Users Employ Humor and Compassion to Connect Around Psychiatric Hospitalization

Today's youth face many mental health challenges and are increasingly represented in psychiatric hospitalizations. Scholars have sought to understand social media's role in mental health issues, but limited work has explored TikTok—the video-centric social media platform that is popular with youth—and people's connect…

Anastasia Schaadhardt et al.University Of Washington

Supporting Goal-Based Collaboration for Hospitalized Children

To increase patient engagement and facilitate patient-provider collaboration, tools that incorporate patients’ goals into medical care plans are needed. However, few studies have explored how hospitalized patients set and share goals to communicate with their caregivers and clinical care teams. Even less is known for…

Yiran Zhao et al.Cornell University

Computer-Supported Teamwork and Collaboration

The Patient Advice System: A Technology Probe Study to Enable Peer Support in the Hospital

Although peer support technologies are critical resources for patients managing health conditions, they do not address the needs of patients in the hospital (i.e., inpatients) or the unique design constraints of this healthcare setting. To examine how the design of these technologies can meet the needs of inpatients,…

Shefali Haldar et al.University Of Washington

Social Support, Donation, and Money

People Who Can Take It: How Women Wikipedians Negotiate and Navigate Safety

Wikipedia is one of the most successful online communities in history, yet it struggles to attract and retain women editors—a phenomenon known as the gender gap. We investigate this gap by focusing on the voices of experienced women Wikipedians. In this interview-based study (N=25), we identify a core theme among thes…

Amanda Menking et al.University Of Washington

Beyond the Patient Portal: Supporting Needs of Hospitalized Patients

Although patient portals—technologies that give patients access to their health information—are recognized as key to increasing patient engagement, we have a limited un- derstanding of how these technologies should be designed to meet the needs of hospitalized patients and caregivers. Through semi-structured interview…

Shefali Haldar et al.University Of Washington

“Suddenly, we got to become therapists for each other": Designing Peer Support Chats for Mental Health

Talk therapy is a common, effective, and desirable form of mental health treatment. Yet, it is inaccessible to many people. Enabling peers to chat online using effective principles of talk therapy could help scale this form of mental health care. To understand how such chats could be designed, we conducted a two-week…

Kathleen O'Leary et al.University Of Washington

Designing a Reclamation of Body and Health: Cancer Survivor Tattoos as Coping Ritual

Historically, tattoos have been perceived as a mark of deviant behavior from the perspective of Western medicine. However, cancer survivor tattoos are one of many strategies used to recover from the trauma of cancer diagnosis and treatment. In this study, we seek to understand the significance of these tattoos in the…

Jordan Eschler et al.University Of Washington

Supporting Collaborative Health Tracking in the Hospital: Patients’ Perspectives

The hospital setting creates a high-stakes environment where patients’ lives depend on accurate tracking of health data. Despite recent work emphasizing the importance of patients’ engagement in their own health care, less is known about how patients track their health and care in the hospital. Through interviews and…

Sonali R. Mishra et al.University Of Washington

Paper Title	Authors	Research Topics
Improving Online Communities for Stigmatized Healthcare: Countering In-Group Microaggressions and Fostering Supportive Connections Women face significant challenges in seeking support for sexual and reproductive health (SRH) due to cultural taboos and microaggressions, even within supposedly safe online spaces. This study focuses on unmarried South Korean women who encounter these difficulties and often risk detrimental health outcomes by avoidin…	HR Hyeyoung Ryu et al.University Of Washington	Trust, Safety, and Privacy in Online Communities
Amplifying Cultural Values with Collaborative Photo-Elicitation: Strengths-Focused Co-Design with Alaska Native People Focusing on deficits in research with historically marginalized communities, such as Indigenous communities, perpetuates negative stereotypes and overlooks their strengths and resilience, contributing to mistrust and epistemic injustice. Shifting to strengths-based research approaches promotes more constructive narrat…	LD Lisa G Dirks et al.University Of Washington
It's About the Journey - Capturing Stories of the Fluctuating Experiences of Youth Kidney Transplant Patients Youth who undergo a kidney transplant can experience a fluctuation of successes and challenges throughout their chronic illness journey. Designing to capture their journey could help youth to reflect on their experiences, collaborate on their care, and be empowered to live their lives to the fullest. We interviewed 11…	JD Julia C. Dunbar et al.University Of Washington	Session 2a: Navigating Family Dynamics and Youth Health Journeys
ConverSense: An Automated Approach to Assess Patient-Provider Interactions using Social Signals Patient-provider communication influences patient health outcomes, and analyzing such communication could help providers identify opportunities for improvement, leading to better care. Interpersonal communication can be assessed through “social-signals” expressed in non-verbal, vocal behaviors like interruptions, tur…	MB Manas Satish Bedmutha et al.University of California
AdRecommended Learn AI Coding at CodeNow Structured lessons, hands-on projects, and continuous updates for people bringing AI into real development work. Explore Now
Designing Communication Feedback Systems To Reduce Healthcare Providers’ Implicit Biases In Patient Encounters Healthcare providers’ implicit bias, based on patients’ physical characteristics and perceived identities, negatively impacts healthcare access, care quality, and outcomes. Feedback tools are needed to help providers identify and learn from their biases. To incorporate providers’ perspectives on the most effective way…	EB Emily Bascom et al.University Of Washington
emoji_events “Laughing so I Don’t Cry”: How TikTok Users Employ Humor and Compassion to Connect Around Psychiatric Hospitalization Today's youth face many mental health challenges and are increasingly represented in psychiatric hospitalizations. Scholars have sought to understand social media's role in mental health issues, but limited work has explored TikTok—the video-centric social media platform that is popular with youth—and people's connect…	AS Anastasia Schaadhardt et al.University Of Washington
Supporting Goal-Based Collaboration for Hospitalized Children To increase patient engagement and facilitate patient-provider collaboration, tools that incorporate patients’ goals into medical care plans are needed. However, few studies have explored how hospitalized patients set and share goals to communicate with their caregivers and clinical care teams. Even less is known for…	YZ Yiran Zhao et al.Cornell University	Computer-Supported Teamwork and Collaboration
The Patient Advice System: A Technology Probe Study to Enable Peer Support in the Hospital Although peer support technologies are critical resources for patients managing health conditions, they do not address the needs of patients in the hospital (i.e., inpatients) or the unique design constraints of this healthcare setting. To examine how the design of these technologies can meet the needs of inpatients,…	SH Shefali Haldar et al.University Of Washington	Social Support, Donation, and Money
People Who Can Take It: How Women Wikipedians Negotiate and Navigate Safety Wikipedia is one of the most successful online communities in history, yet it struggles to attract and retain women editors—a phenomenon known as the gender gap. We investigate this gap by focusing on the voices of experienced women Wikipedians. In this interview-based study (N=25), we identify a core theme among thes…	AM Amanda Menking et al.University Of Washington
Beyond the Patient Portal: Supporting Needs of Hospitalized Patients Although patient portals—technologies that give patients access to their health information—are recognized as key to increasing patient engagement, we have a limited un- derstanding of how these technologies should be designed to meet the needs of hospitalized patients and caregivers. Through semi-structured interview…	SH Shefali Haldar et al.University Of Washington
emoji_events “Suddenly, we got to become therapists for each other": Designing Peer Support Chats for Mental Health Talk therapy is a common, effective, and desirable form of mental health treatment. Yet, it is inaccessible to many people. Enabling peers to chat online using effective principles of talk therapy could help scale this form of mental health care. To understand how such chats could be designed, we conducted a two-week…	KO Kathleen O'Leary et al.University Of Washington
emoji_events Designing a Reclamation of Body and Health: Cancer Survivor Tattoos as Coping Ritual Historically, tattoos have been perceived as a mark of deviant behavior from the perspective of Western medicine. However, cancer survivor tattoos are one of many strategies used to recover from the trauma of cancer diagnosis and treatment. In this study, we seek to understand the significance of these tattoos in the…	JE Jordan Eschler et al.University Of Washington
Supporting Collaborative Health Tracking in the Hospital: Patients’ Perspectives The hospital setting creates a high-stakes environment where patients’ lives depend on accurate tracking of health data. Despite recent work emphasizing the importance of patients’ engagement in their own health care, less is known about how patients track their health and care in the hospital. Through interviews and…	SM Sonali R. Mishra et al.University Of Washington