Living Memory Home: Understanding Continuing Bond in the Digital Age through Backstage Grieving
Authors
Cognitive Impairment & Neurodiversity (Autism, ADHD, Dyslexia)Mental Health Apps & Online Support Communities
Title of the Paper
Living Memory Home: Understanding Continuing Bond in the Digital Age through Backstage Grieving
Paper Information
- Research Domain: Digital Bereavement, Human-Computer Interaction (HCI), Psychology
- Keywords: Prolonged Grief Disorder, Continuous Bonds, Digital Grieving, Thanatosensitive Technology, Digital Memorials
Research Background and Problem Statement
- Issues and Challenges:
- Bereavement is a common and natural experience, but a minority may develop Prolonged Grief Disorder (PGD), characterized by prolonged difficulty in accepting loss, leading to emotional numbness, loss of trust, and diminished self-identity.
- With the widespread adoption of digital technologies, more people are using social media or websites to commemorate the deceased. However, systematic research on the impact of digital memorialization on grief adjustment remains lacking.
- Significance:
- Understanding how continuous bonds in digital grieving facilitate or hinder psychological recovery can help optimize the design of digital tools and reduce the risk of PGD.
- Motivation and Related Work:
- The fields of "digital memorials" and "continuous bonds" have garnered attention in HCI, but existing studies predominantly focus on public grieving behaviors on social media ("frontstage grieving"), neglecting private "backstage grieving."
- This study aims to fill this knowledge gap by analyzing the potential effects of private digital memorialization behaviors on emotional recovery.
Solution
- Methods and Approach:
- Developed a customized web application called "Living Memory Home" (LMH), designed to create a private digital space for bereaved individuals to record, commemorate, and remember the deceased, thereby helping them maintain "continuous bonds" with the departed.
- Conducted a one-month user study, including in-depth interviews and emotional log analysis, to explore LMH's role in supporting "backstage grieving."
- Innovations:
- Introduced the concept of "backstage grieving," emphasizing self-reflection and emotional expression in private digital contexts for bereaved individuals.
- Investigated how technology design can provide a safe and controlled space for emotional expression, avoiding the pressures of "frontstage grieving" (e.g., public scrutiny, emotional performativity).
- Implementation Steps and Technology:
- Designed an application with two main features: a "Memorial Space" where users can create customizable virtual grieving scenes, and a "Desk" for recording memories of the deceased and completing guided writing prompts.
- Participants were required to complete one week of mandatory login and writing tasks, followed by three weeks of optional system use.
- Regular interviews and psychological questionnaires were conducted to evaluate participants' emotional changes and system usage experience.
Research Findings
- Specific Results:
- Content analysis identified four key themes of "backstage grieving":
- Grieving as a Private Affair: Many participants preferred private grieving and viewed social media as "an unsuitable public venue for expressing sorrow."
- Narrative Control over Negative Emotions: Participants gradually accepted negative memories of the deceased through writing and reminiscing, gaining greater control over their grief narratives.
- Connecting Past and Present: By reflecting on the values and wisdom of the deceased, participants integrated memories into their current life contexts to seek emotional support.
- Digital "Thought Meditation Tool": Participants perceived LMH as a memory storage tool to construct a "new type of relationship" with the deceased.
- Content analysis identified four key themes of "backstage grieving":
- Advantages Compared to Existing Solutions:
- Provides a safe and private digital space, complementing the public nature of social media.
- Encourages bereaved individuals to reflect on negative emotions and release and reconstruct their feelings through writing, rather than simply avoiding or suppressing grief.
- Experimental and Evaluation Results:
- In-depth interviews with 17 users confirmed LMH's potential benefits in reducing negative emotions and controlling grief narratives.
- Some users reported emotional relief or a redefined relationship with the deceased.
- Limitations and Future Directions:
- Limitations:
- Limited sample size primarily concentrated in a single region (New York metropolitan area), with insufficient exploration of cultural and religious diversity.
- The one-month study period did not allow observation of long-term effects or include participants in the early stages of bereavement.
- Future Directions:
- Expand the user base and study duration to observe the needs of different grieving stages.
- Consider incorporating more cultural or ritualistic elements to support bereaved individuals from diverse backgrounds.
- Explore how to balance reflection on negative emotions with preventing excessive immersion in grief to avoid "getting stuck in sorrow."
- Limitations:
Research Questions / Practical Problems
Question signals indexed for this paper.
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Research Questions
3- Does private digital memorial behavior help alleviate long-term grief?Category: Music, Sound, Art, and Cultural Media ToolsSimilar questionsarrow_forward
- What role does backstage mourning play in bereaved people's psychological recovery?Category: Music, Sound, Art, and Cultural Media ToolsSimilar questionsarrow_forward
- How can digital tools support bereaved people in reflecting on emotions and redefining relationships with the deceased in private spaces?Category: Music, Sound, Art, and Cultural Media ToolsSimilar questionsarrow_forward
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Practical Problems
1- Grieving people are unwilling to express emotions publicly on social media and lack private memorial methods.Category: Music, Sound, Art, and Cultural Media ToolsSimilar questionsarrow_forward
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DOI: https://doi.org/10.1145/3411764.3445336
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2021
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Cognitive Impairment & Neurodiversity (Autism, ADHD, Dyslexia), Mental Health Apps & Online Support Communities
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