Supporting Communication About Values Between People with Multiple Chronic Conditions and their Providers
Authors
People with multiple chronic conditions (MCC) often disagree with healthcare providers on priorities for care, leading to worse health outcomes. To align priorities, there is a need to support patient-provider communication about what patients consider important for their well-being and health (i.e., their personal values). To address barriers to communication about values, we conducted a two-part study with key stakeholders in MCC care: patients, informal caregivers, and providers. In Part I, co-design activities generated seven dimensions that characterize stakeholders' diverse ideas for supporting communication about values: explicitness, effort, disclosure, guidance, intimacy, scale, and synchrony. In Part II, we used the dimensions to generate three design concepts and presented them in focus groups to further scrutinize findings from Part I. Based on these findings we outline directions for research and design to improve patient-provider communication about patients' personal values.
Research Questions / Practical Problems
Question signals indexed for this paper.
- 80%
Designing in the Dark: Eliciting Self-tracking Dimensions for Understanding Enigmatic Disease
CHI '18· Mental Health Apps & Online Support Communities +1
- 80%
Pictures Worth a Thousand Words: Reflections on Visualizing Personal Blood Glucose Forecasts for Individuals with Type 2 Diabetes
CHI '18· Mental Health Apps & Online Support Communities +1
- 80%
"Tricky to get your head around": Information Work of People Managing Chronic Kidney Disease in the UK
CHI '19· Mental Health Apps & Online Support Communities +1
- 71%
Factors Influencing Digital Health Engagement of Older Adults with Multimorbidity during a Longitudinal Trial
CHI '26· Mental Health Apps & Online Support Communities +2
- 71%
“Data Is One Thing, But I Want To Know The Story Behind”: Designing For Self-Tracking and Remote Patient Monitoring In The Context Of Multiple Sclerosis Care
DIS '24· Mental Health Apps & Online Support Communities +2
- 67%
Exploring the Value of Parent Tracked Baby Data in Interactions with Healthcare Professionals: A Data-enabled Design Exploration
CHI '18· Mental Health Apps & Online Support Communities +2
- 67%
Understanding the Mundane Nature of Self-care: Ethnographic Accounts of People Living with Parkinson's
CHI '18· Mental Health Apps & Online Support Communities +1
- 67%
"My blood sugar is higher on the weekends": Finding a Role for Context and Context-Awareness in the Design of Health Self-Management Technology
CHI '19· Mental Health Apps & Online Support Communities +1
- 67%
A Wee Bit More Interaction: Designing and Evaluating an Overactive Bladder App
CHI '19· Mental Health Apps & Online Support Communities +1
- 67%
Design for co-responsibility: connecting patients, partners, and professionals in bariatric lifestyle changes
DIS '20· Mental Health Apps & Online Support Communities +1
Based on Jaccard similarity of research subtopics & professions (≥60%)