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Author: 6156

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Fictional Failures and Real-World Lessons: Ethical Speculation Through Design Fiction on Emotional Support Conversational AI

Conversational artificial intelligence (CAI), which replicates human-to-human interaction as human-to-machine, is increasingly developed to address insufficient access to healthcare. In this paper, we use design fiction methods to speculate on ethical consequences of CAI that offers emotional support to complement or…

Faye Kollig et al.University of Colorado

Unveiling the Toxic World of #Meanspo: Understanding Users' Emerging Online Eating Disorder Practices in X/Twitter

Meanspo, an antagonistic form of online support within the eating disorder (ED) community, involves the direct solicitation or sharing of aggressive and insulting online content. This study presents findings from a comprehensive qualitative analysis of #meanspo content on X (previously Twitter) from May 2020 (N=752).…

Fayika Farhat Nova et al.Parkview Health

Session 2d: Analyzing and Shaping User Behavior on Social Media

Providing Context to the "Unknown": Patient and Provider Reflections on Connecting Personal Tracking, Patient-Reported Insights, and EHR Data within a Post-COVID Clinic

COVID Long Haul (CLH) is an emerging chronic illness for which the healthcare system continues to seek a common understanding of symptoms, diagnosis, and treatment. CLH experiences can differ drastically, necessitating personalized care plans. Because patients interact with different clinicians during their CLH journe…

Shaan Chopra et al.Indraprastha Institute of Information Technology Delhi

Session 4b: Patient-Centered Care and Youth Empowerment

Designing for Researcher Access in the U.S. Mortality Data Ecosystem

Access to mortality data is critical for researchers for various reasons, including the development of life-saving medical interventions. However, high-quality mortality data is typically unavailable for researchers to access in a timely manner due to bottlenecks and inefficiencies in the coordination of managing mort…

Dylan Thomas Doyle et al.University of Colorado Boulder

Session 1e: Empowering Data Work

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Charting the COVID Long Haul Experience - A Longitudinal Exploration of Symptoms, Activity, and Clinical Adherence

COVID Long Haul (CLH) is an emerging chronic illness with varied patient experiences. Our understanding of CLH is often limited to data from electronic health records (EHRs), such as diagnoses or problem lists, which do not capture the volatility and severity of symptoms or their impact. To better understand the uniqu…

Jessica Pater et al.Parkview Health

Social Media is not a Health Proxy: Differences Between Social Media and Electronic Health Record Reports of Post-COVID Symptoms

The COVID-19 pandemic transformed many aspects of health and daily life. A subset of people who were infected with the virus have ongoing chronic health issues that range in type of symptom and severity. In this study, we conducted a qualitative assessment of self-reported post-COVID symptoms from patients’ electronic…

Jessica Pater et al.Parkview Health

Health Information

Uncovering Adverse Childhood Experiences (ACEs) from Clinical Narratives within the Electronic Health Record

Adverse Childhood Events (ACEs) are potentially traumatic events that occur in childhood (e.g. sexual abuse and maternal violence). Clinical research highlights the significant impact ACES have on youth’s mental health similar to other youth-related issues like traditional bullying and cyberbullying. However, research…

Fayika Farhat Nova et al.Marquette University

Health Technologies; Health Technologies

The work of digital social re-entry in substance use disorder recovery

Early recovery after substance use disorder (SUD) treatment is a high-risk period. The majority of people will relapse, often within weeks of completing treatment. In the modern era, re-entry upon completion of treatment includes both digital and non-digital spaces. Digital spaces, including social media, present uniq…

Chanda Phelan Kane et al.University of Michigan

Health and Consultation Practices, Addictive Behaviors, and Social Re-entry; Health and Consultation Practices, Addictive Behaviors, and Social Re-entry

User-Centered Design of a Mobile App to Support Peer Recovery in a Clinical Setting

The misuse of legal and illegal drugs has grown to such an acute level that it now represents a public health crisis in the United States. To support clinical treatments of substance use disorders (SUDs), formal non-clinical peer recovery support programs pairing coaches with people new to recovery are gaining in popu…

Jessica Pater et al.Parkview Health

Social Support and Intervention

Standardizing Participant Compensation Reporting in HCI: A Meta-Review and Recommendations for the Field

The user study is a fundamental method used in HCI. In designing user studies, we often use compensation strategies to incentivize recruitment. However, compensation can also lead to ethical issues, such as coercion. The CHI community has yet to establish best practices for participant compensation. Through a systemat…

Jessica Pater et al.Parkview Health

Charting the Unknown: Challenges in the Clinical Assessment of Patients' Technology Use Related to Eating Disorders

A growing body of research in HCI focuses on understanding how social media and other social technologies impact a given user’s mental health, including eating disorders. In this paper, we review the results of an interview study with 10 clinicians spanning various specialties who treat people with eating disorders, i…

Jessica Pater et al.Parkview Health

Paper Title	Authors	Research Topics
Fictional Failures and Real-World Lessons: Ethical Speculation Through Design Fiction on Emotional Support Conversational AI Conversational artificial intelligence (CAI), which replicates human-to-human interaction as human-to-machine, is increasingly developed to address insufficient access to healthcare. In this paper, we use design fiction methods to speculate on ethical consequences of CAI that offers emotional support to complement or…	FK Faye Kollig et al.University of Colorado
Unveiling the Toxic World of #Meanspo: Understanding Users' Emerging Online Eating Disorder Practices in X/Twitter Meanspo, an antagonistic form of online support within the eating disorder (ED) community, involves the direct solicitation or sharing of aggressive and insulting online content. This study presents findings from a comprehensive qualitative analysis of #meanspo content on X (previously Twitter) from May 2020 (N=752).…	FN Fayika Farhat Nova et al.Parkview Health	Session 2d: Analyzing and Shaping User Behavior on Social Media
Providing Context to the "Unknown": Patient and Provider Reflections on Connecting Personal Tracking, Patient-Reported Insights, and EHR Data within a Post-COVID Clinic COVID Long Haul (CLH) is an emerging chronic illness for which the healthcare system continues to seek a common understanding of symptoms, diagnosis, and treatment. CLH experiences can differ drastically, necessitating personalized care plans. Because patients interact with different clinicians during their CLH journe…	SC Shaan Chopra et al.Indraprastha Institute of Information Technology Delhi	Session 4b: Patient-Centered Care and Youth Empowerment
Designing for Researcher Access in the U.S. Mortality Data Ecosystem Access to mortality data is critical for researchers for various reasons, including the development of life-saving medical interventions. However, high-quality mortality data is typically unavailable for researchers to access in a timely manner due to bottlenecks and inefficiencies in the coordination of managing mort…	DD Dylan Thomas Doyle et al.University of Colorado Boulder	Session 1e: Empowering Data Work
AdRecommended Learn AI Coding at CodeNow Structured lessons, hands-on projects, and continuous updates for people bringing AI into real development work. Explore Now
Charting the COVID Long Haul Experience - A Longitudinal Exploration of Symptoms, Activity, and Clinical Adherence COVID Long Haul (CLH) is an emerging chronic illness with varied patient experiences. Our understanding of CLH is often limited to data from electronic health records (EHRs), such as diagnoses or problem lists, which do not capture the volatility and severity of symptoms or their impact. To better understand the uniqu…	JP Jessica Pater et al.Parkview Health
Social Media is not a Health Proxy: Differences Between Social Media and Electronic Health Record Reports of Post-COVID Symptoms The COVID-19 pandemic transformed many aspects of health and daily life. A subset of people who were infected with the virus have ongoing chronic health issues that range in type of symptom and severity. In this study, we conducted a qualitative assessment of self-reported post-COVID symptoms from patients’ electronic…	JP Jessica Pater et al.Parkview Health	Health Information
Uncovering Adverse Childhood Experiences (ACEs) from Clinical Narratives within the Electronic Health Record Adverse Childhood Events (ACEs) are potentially traumatic events that occur in childhood (e.g. sexual abuse and maternal violence). Clinical research highlights the significant impact ACES have on youth’s mental health similar to other youth-related issues like traditional bullying and cyberbullying. However, research…	FN Fayika Farhat Nova et al.Marquette University	Health Technologies; Health Technologies
The work of digital social re-entry in substance use disorder recovery Early recovery after substance use disorder (SUD) treatment is a high-risk period. The majority of people will relapse, often within weeks of completing treatment. In the modern era, re-entry upon completion of treatment includes both digital and non-digital spaces. Digital spaces, including social media, present uniq…	CK Chanda Phelan Kane et al.University of Michigan	Health and Consultation Practices, Addictive Behaviors, and Social Re-entry; Health and Consultation Practices, Addictive Behaviors, and Social Re-entry
User-Centered Design of a Mobile App to Support Peer Recovery in a Clinical Setting The misuse of legal and illegal drugs has grown to such an acute level that it now represents a public health crisis in the United States. To support clinical treatments of substance use disorders (SUDs), formal non-clinical peer recovery support programs pairing coaches with people new to recovery are gaining in popu…	JP Jessica Pater et al.Parkview Health	Social Support and Intervention
Standardizing Participant Compensation Reporting in HCI: A Meta-Review and Recommendations for the Field The user study is a fundamental method used in HCI. In designing user studies, we often use compensation strategies to incentivize recruitment. However, compensation can also lead to ethical issues, such as coercion. The CHI community has yet to establish best practices for participant compensation. Through a systemat…	JP Jessica Pater et al.Parkview Health
Charting the Unknown: Challenges in the Clinical Assessment of Patients' Technology Use Related to Eating Disorders A growing body of research in HCI focuses on understanding how social media and other social technologies impact a given user’s mental health, including eating disorders. In this paper, we review the results of an interview study with 10 clinicians spanning various specialties who treat people with eating disorders, i…	JP Jessica Pater et al.Parkview Health