'She's Just My Life': Digital Design to Support Women's Self-Other Care in Relationships with their Mothers

Inclusive DesignEmpowerment of Marginalized GroupsParticipatory DesignSocial WorkersFamily Caregivers

Title of the Paper

She’s Just My Life: Digital Design to Support Women’s Self-Other Care in Relationships with their Mothers

Paper Information

  • Field of Study: Human-Computer Interaction (HCI), Technology and Care, Gender Studies
  • Keywords: Digital care, family relationships, health and well-being, gender, women’s health, ethics of care, family technology design, intergenerational relationships

Research Background and Problem

  • Issues and Challenges: Current digital care research often focuses on individualized models rather than considering the family as a unit of care and support. Additionally, there is limited research on how factors such as gender and class influence everyday caregiving relationships within families.
  • Significance: Women, particularly in adulthood, often take on evolving caregiving responsibilities in their relationships with their mothers, which can have profound impacts on the health and well-being of both parties.
  • Research Motivation and Related Work:
    • Recent HCI research on women’s health has been working to move beyond male-centered design perspectives, addressing women’s unique health needs.
    • However, existing studies on the emotional and caregiving dynamics between mothers and daughters, especially those arising from aging and role reversals, remain superficial.
    • Current family health technology research has yet to adequately demonstrate how appropriate design can support these complex relational dynamics.

Solution

  • Proposed Approach:
    1. Conduct interview studies to explore women’s experiences of caregiving and self-well-being in their relationships with their mothers.
    2. Propose six design concepts aimed at supporting caregiving and communication within families through digital products.
  • Innovative Aspects:
    • Investigating “mother-daughter relationships” as a unique perspective for digital technology to support intimate, informal caregiving.
    • Employing experience-driven design methods to integrate family care with gendered experiences in daily interactions.
  • Implementation Steps:
    1. Data Collection and Analysis: Conduct in-depth interviews with six women from Ireland to study their caregiving practices for their mothers and their perspectives on their own well-being.
    2. Concept Design: Based on data analysis, develop six preliminary design concepts through brainstorming and speculative design.
    3. User Feedback and Evaluation: Engage participants in discussions about the design concepts and gather feedback to refine the design directions.

Research Outcomes

  • Specific Findings:

    1. Identified four core themes:
      • Self-other caregiving behaviors
      • Blurred boundaries and identity formation
      • Relationship changes across the life cycle
      • Living spaces and conflicts
    2. Developed six digital prototypes, such as "IceBreaker," "Storm Glass," and "Answering Glass," aimed at addressing key tensions in mother-daughter relationships.
    3. Offered a series of recommendations for future research, including discussions on radical care technologies, designing for “independent spaces,” and anticipating relational tensions across the life cycle.
  • Comparison with Existing Solutions and Advantages:

    • The proposed designs focus not only on caregiving goals (e.g., disease management) but also on fostering dialogue and reflection among family members through digital tools.
    • Compared to health monitoring products, these designs are more “gentle” and “contextualized,” better suited to women’s everyday caregiving relationships.
  • Experiments and Evaluation:

    • User feedback indicated that the designed tools provided inspiration and practicality for everyday caregiving and communication.
    • However, concerns about privacy and technological complexity highlighted the need for careful ethical considerations in future product designs.
  • Limitations and Future Directions:

    • The small sample size limits the generalizability of the findings.
    • Ethical and privacy concerns, such as asymmetrical monitoring technologies, could undermine the dignity of the care recipient.
    • Future research should include more diverse samples in terms of culture, class, and gender and extend the design to other types of intimate relationships (e.g., transgender or non-binary mother-daughter relationships).

This study provides an insightful framework for ethics of care and gender-oriented design in the HCI field, offering valuable theoretical and design guidance for the development of health and well-being technologies in the future.

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https://hci.top/en/papers/chi/71861/2022

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DOI: https://dl.acm.org/doi/abs/10.1145/3491102.3517611
At a Glance

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Source
CHI
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Year
2022
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Authors
3 authors
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Subtopics
Inclusive Design, Empowerment of Marginalized Groups, Participatory Design
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Professions
Social Workers, Family Caregivers
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